Chronic illness is mentally draining to a point I can't articulate anywhere close to appropriately. Sorry to hear. I have Chron's and there's suspicion of other potential autoimmune related things. I'm fortunate chronic pain isn't one of the more disabling symptoms I experience, but the fatigue is something I wouldn't wish on my worst enemy. Rheumatology has come a long way. Don't lose hope, treatment is far better today than it was even a couple years ago for virtually every autoimmune issue.
Thanks y'all for the wishes. I'm up right now because I have something called dropfoot? Along with neuropathy. When i go to sleep, I wake up feeling like I'm walking on gravel. It is getting to me bad. And yes, i'm drinking, because I can't sleep. I have to keep my legs moving as much as possible. At least Liverpool is playing their C team tomorrow in the Caribou Cup.
my MIL has had RA for over a decade now. she's doing okay, but the injections she has to take in her eyes every few weeks are her least favorite part.
shit - sorry. I just checked with my wife. the eye condition is not part of the RA. despite what my MIL believes. separate thing. veinal occlusion of the retina.
guy I work with had to do this like once a month or something after one day he woke up and was suddenly color blind It always sounded fucking terrible
No, I was his supervisor at the time He literally called me one morning to tell me he wasn't coming in because he he can't see color
Some positive personal news. My mom has stage 4 lobular breast cancer that had spread to bones, spot on liver, etc etc. she took chemo pills for a while and it did well but eventually ended up with a port and traditional chemo. Her last checkup and markers were so positive that doc even used the word remission, which we didn't think was really possible at her stage. Just a surprisingly positive and optimistic update
Haven’t been very good updates lately for George :/ George’s poor body is really feeling the effects of all his chemo treatments so far, and things hit a scary point this weekend. After both weeks of his daily extensive treatments, he has needed blood transfusions at his chemo appointments the week after. Unfortunately this past week’s transfusion wasn’t enough, and Friday evening he had a fever of 101.5. For anyone that doesn’t know, one thing you don’t take lightly with chemo patients are fevers. I took George to our local ER where we learned his lab results were dangerously low, and immediately had to be transported by ambulance to Children’s Mercy. Throughout our weekend-long stay he had to receive 2 platelet transfusions, another blood transfusion, and multiple rounds of antibiotics. It was a long, exhausting, and difficult weekend, but thankfully we are finally home. Please continue to keep our boy in your prayers, as he still has months worth of chemo to go that will continue to take these kinds of tolls on his poor little body.
My mom has was diagnosed around 10 years ago. Never been able to find a drug that will put it in remission. Multiple surgeries and regular rounds of what is effectively chemo therapy. She has had to retire from painting because she can't hold a paintbrush. Sorry you're dealing with this. I know it's hell.
One of my best friends has liver cancer and had a post last week essentially saying he needed a liver transfer to live. Unreal engagement and people willing to donate. Makes you feel good about humanity. In his post has his family (wife, 2 little kids). Always a guy who has to ruin a good thing. none of us know this guy so such a weird thing to post on a FB cancer post.
My 11 year old nephew just got diagnosed with osteosarcoma in his femur after falling off a scooter. Going through treatment now, and going to be a long tough road for him. Figure I’d shoot my shot here and see if anyone has connections to any athletes that could make him a video wishing him well. Feel helpless in that there’s nothing I can do, but he’s a sports nut so figure if I can lift his spirits that’s at least something. If nothing else appreciate any good vibes or prayers you can send his way
He loves basketball and football, as much as it kills me huge uga fan, but really anyone would be awesome
I don’t know how well he knows the old heads but besides spud for $100 there’s Terrell Davis for $250 and Roddy White for $300. I got $50 on it
Unfortunately I have to bump this dreadful thread. I beat Stage 3 rectal cancer last year after treatment and no surgery. I had just got back to feeling great with the chemo out of my system in December trying to enjoy life as much as possible (even though the Hawks make that as difficult as they can). However I have it in two different parts of my body now confirmed by a PET scan this morning. Lymph nodes in colon and right lung spot (9mm). This makes it Stage 4. Survival rates for Stage 4 Rectal/Colon cancer are extremely low even for an otherwise healthy person like me. I had also just had a minor non-cancer out patient surgery two weeks ago but when I went to the surgeon Thursday to check on healing he said he pulled out a mass that came back as cancer. This spot to find a tumor is so incredibly rare that only 7 recorded cases are known. 6 of those 7 were still alive by the time of the report (400 days to 1400 days) but unfortunately the only one that had a spot on their lung was dead in less than 250 days. I’ve been expecting the worse from the lung spot in previous scans but it’s still tough to process. I will be scheduled sometime soon for major reconstructive surgery that will be a long recovery. I’m crossing my fingers that they can push it past May 19th. I had planned on going to Utah for a music festival for my 50th birthday. I don’t know if I will get another chance to travel so I’m going to do everything I can to go and make a few more great memories. I’m not giving up by any means and I’ll shitpost as long as I can. edit: surgery has been moved to June 10.
wishing you all the best to you and your treatment providers to overcome this. And in the meantime, I hope you continue to get to do everything you love. let us know if TMB can do anything for you.
Sorry to hear that man, hope everything goes as well as possible. Do you know if you get to make the Utah trip?
Yes, I’m making the trip to Utah. This will be my last trip possibly. But I’m doing what I love in a music festival and closing the festival with of my favorite artists Justice. Unfortunately I found out this morning that it is likely in my prostate as well from MRI results. This thing is just working overtime to kill me. Surgery is scheduled May 27th (edit June10 now) in Tampa unless the new info changes that.
Little man is having rotationplasty surgery on Friday to remove the tumor, going to be a long surgery with a long hard recovery afterwards. Appreciate any prayers or good thoughts you can send his way on Friday, his name is Luke.
My wife was diagnosed with ductile carcinoma in her left breast two weeks ago. We're waiting to find out if it's metastatic. Should know in a few days. I wanna throw up.
Enjoy the next few months to few years as much as possible, hope for more, hope for a miraculous advancement in metastatic breast cancer treatment before it's too late. That's pretty much it. I've been learning what anticipatory grief is. Trying to remain optimistic. It's pretty bleak.
my mom passed away yesterday due to complications with cancer at the beginning of march they discovered she had more than 20 tumors on her brain. they immediately began radiation in hopes of stopping their growth to buy her time. but we always knew this was terminal. ultimately we never were able to complete enough tests to specifically identify the type of cancer it started out as; it just progressed too damn fast and at 73 she just didn't have the energy to explore it and fight. by Easter she began to have complications and she spent 2 weeks at the James at OSU. we quickly got her into a facility to live that could provide care. she moved in there at the beginning of May and immediately started hospice care. her decline was so rapid. by last Thursday she didn't recognize me when I came to visit. By Saturday they informed us she was no longer eating or taking in water and it was only a matter of time. I got the call just before 5am yesterday. I'm an only child and a self admitted mama's boy. She raised me as a single mom, she gave me everything I ever wanted. I miss her so much already. My wife thankfully beat breast cancer in 2019 and then pancreatic (Ewing Sarcoma) in 2022. I can't get away from this retched disease Fuck cancer
I'm so sorry. That's awful. My wife's mother lost her own mother to breast cancer at 49 and now is poised to potentially lose her daughter in her 30's, and I just can't imagine how she must feel. And yet she was the one holding me while I sobbed after getting the news. This shit is just so fucking awful. I'm tryng to do these mental gymnastics where I want to mentally prepare myself for the loneliness and heartbreak of losing my wife, while also trying to stay positive and believe that she can outlive her prognosis and enjoy some level of meaningful existence in that time.
I wish I could say the perfect thing to give you hope or relieve some of the fear. But unfortunately I know how you are feeling and at times it does feel hopeless I spent much of 2022 thinking the chemo was just prolonging the inevitable. And even today, every time she has her scans I can't help but fear for the worst given her health history Just try your best to enjoy the times she has energy and feels semi normal. Take her to dinner. Go on small trips. Try to spend as much time with her as you can while you can. Every day is a gift from here on out. It won't make it easier to deal with, but at least you can make as many memories together as possible to cherish and remember if or when her time expires. I'm really sorry you and her have to go through this. There is no road map or proper way to prepare. And no matter what, you will always feel like you didn't have as much time as you needed.
My deepest and sincerest condolences for your loss. She sounds like a wonderful person and mother. May she rest in peace.
Wanted to pass on some good news for a change in this thread. My surgery was a success and all cancer removed (other than spot on my lung) and in recovery. 10 hours total. Considering all I had done, my stomach area is the only thing hurting at the moment.
Need to get through recovery on this first which will be a battle. Six weeks without sitting down otherwise my rebuilt butt would tear. After that radiation on the lung spot to hopefully remove without surgery. Then treatment for whatever shows up next. Odds aren’t great that I’m going to make it five years but the surgery gives me a ~35% chance. I could get incredibly lucky and no cells hiding out anywhere other than the lung but at least the primary tumor area is gone now and not contributing to my early death any longer. I’m also incredibly lucky that they didn’t remove any of my other bits and pieces. Was very worried about waking up without them or my prostate since the tumors were growing so rapidly. As Borat would say, “Great Success!”