Help for Vincent the Conqueror

Discussion in 'The Mainboard' started by Carl Brutananadilewski, Feb 16, 2022.

  1. Carl Brutananadilewski

    Carl Brutananadilewski do what now?
    Donor

    https://www.gofundme.com/f/kn3ej4-vincent-the-conqueror

    A while back I posted a gofundme for a very close friend who's daughter developed brain cancer. My friend's wife started a charity after their daughter passed, and through that work knows many of the pediatric brain cancer patients in the northeast.

    I learned about Vincent through her, and his story is absolutely brutal. He just turned 4 and has been battling cancer since he was 3 months old. He recently developed what they believe to be a secondary cancer in his lymph nodes brought on by his chemo treatment. Please keep Vincent in your thoughts and prayers, and I'm sure any help that TMB is able to provide would be greatly appreciated by his family.

    https://www.facebook.com/vincenttheconqueror
    From their facebook:
    Imagine doing everything possible to save your child from an extremely aggressive brain cancer that gave him less than 10% chance of survival. 3 times. And he beats it. 3 times.
    Imagine your baby going into liver failure at 14 months old from a reaction to a chemotherapy that the best children's hospital in the country had never seen happen before. And you're told he's at the end of his life. But he beats it and recovers.
    Imagine a whole community of parents who are holding onto hope for their child because your child is doing extremely well and they want the same experimental medication for their child.
    Imagine having to choose to poison your child with a drug that may kill them because if you don't they will die for sure.
    Imagine being told that the treatment you chose, the treatment that has been saving your baby from brain cancer for the past 18 months, has caused another type of cancer to develop.
    You can't. Because it's too much to even bear the thought of these things. Because it shouldn't be happening.
    But it is. To our family.
    Vincent has t-cell lymphoma, type still unknown. He's complex of course, always the rarest of the rare. We aren't sure of his treatment plan yet but it will involve lots of chemo and it will be hard. We were told that several times today. His plan will need to be tailored to him, not standard, because he's not the standard patient who's first diagnosed and has never had chemo. His body has limits. And his brain cancer isn't being treated and won't be with the lymphoma plan. If it comes back, we won't have the options we were holding on to.
    He's most likely going to start chemo Thursday or Friday. I don't want to do it. I don't want to put him through that again. He has fought his whole life and he has really started to thrive and we are going to take that from him. When he was diagnosed with brain cancer we knew treatment would be hard, but we didn't really know how hard. You can't know until you see it up close. It was worse than I imagined. And this time we really know how bad it can be. Look at him. Look at his healthy sweet face so full of energy. It kills my soul to take that from him.
    I can not believe this is happening. I recently saw a quote that said "it's tough being the person everyone is glad they aren't". This is painfully true. I don't want to be me either.
    Pray. Like. He. Is. Yours.
     
    #1 Carl Brutananadilewski, Feb 16, 2022
    Last edited: Feb 16, 2022
    ned's head likes this.
  2. cdaysker

    cdaysker Quarry
    Donor TMB OG
    Nebraska Cornhuskers alt

    Donated.

    What an awful, terrible situation for any child to have to endure. Sending all the positive thoughts to Vincent and his family.
     
  3. ned's head

    ned's head Well-Known Member
    Donor

    I'm in as well. Thoughts go out to him and his family. That's such a tragic story.
     
  4. ned's head

    ned's head Well-Known Member
    Donor

    Not a good update. Such a sad story.